Ya Gotta Love Grandparents

January 5th, 2009

My Grandparents bought this for Bug for Christmas:

I guess I don’t really have to tell you about the headache I have.  You can probably imagine what 5AM is like in our house these days.  Why the Hubby and I haven’t put it away at night I still can’t figure out, LOL!  We really need to stick it in the closet at night and then he can get it out in the morning.  Right now Bug is banging away on the drum with one hand while singing very loudly and using the other hand to keep adding 1 on his calculator thus counting in seconds how long his song is.  Bean is dancing around him in circles and squealing with joy. 

I am heading for the Tylenol. ;)

Tears, Guilt, Autism

January 4th, 2009

So the Hubby received a gift card to this store called Scheels from one of the contractors he works with.  We have never been to that store and really I had never heard of it before this so today we packed the family up and we went to check it out.  It is nearly an hour drive from our house so this was a big adventure.  The store is huge.  There is a fresh water aquarium on one side, a salt water aquarium on the other side and a full-size ferris wheel smack in the middle (yes, I said ferris wheel).  They have a play area for the kids with a rock climbing wall and one of those tunnel things with slides and plastic bubbles and such.  There is also a restaurant - and that is all just on the first floor!

From the sound of it you would think it would be a family day paradise, huh?  Well, maybe for a “normal” family it would.  You want the truth though - for us it sucked and I am going to go for sympathy and tell you that today I am writing about my feelings because for me today just sucked major and I really just wanted to fall over and start sobbing but I couldn’t so here I am now, blogging, letting it all out.

When we walked in the store initially everything was fine, but I looked over at Bug and noticed his eyes widening.  My initial thought was “oh no” but I didn’t want to show any emotion so I blew it off and just pointed out the fish.  Bean was beside herself with glee over the fish and Bug got into the joy of it all too.  It took about five minutes and then his expression totally changed.  There were tons of people - the place was packed.  It was loud and there were the lights on the ferris wheel - heck, I felt a bit over stimulated by it all so when I saw Bug (at about fifteen minutes into it all) just sit down on the floor and start rocking I knew without a doubt that it was all too much for him to handle.  He sat for a minute and then he got up and paced and then he sat some more then paced some more and then started touching and feeling everything in sight.  We decided to start walking and that is when the first meltdown started.  Bug started screaming.

Now, when you are in a store with that many people and your child starts screaming, well, let’s be honest - it’s embarrassing!  People start staring, you see some people mumble under their breath - it sucks.  And yes, I am using the word “sucks” and awful lot today, but it sucks!

We got Bug to an area in the store where there weren’t a lot of people and he proceeded with his meltdown.  I knelt down with him and tried to get him to breathe through it all and after about a half hour (not too long, it’s a record!) he calmed himself down.  He ate a snack I had brought for him and then he was ready to go again.  In reality at that point we should have left but Hubby and I were determined to see this store as we had driven quite a distance to get there.  And that is when we walked right into the children’s play area.

I knew it was a bad idea.

Every ounce of my being was screaming “no, don’t let him go!”

But when Bug looked up at me with those eyes of his and said, “I want to try it, Mommy.”  Well, seriously people, how could I say no?  I mean, I could have said no - but the kid has to experience life!  And then Bean chimed in, “Me too, Mommy! I want to go too!”

And so it began.

The first problem is that in all those types of places children are required to take off their shoes.  This meant Bug too.  This meant that his feet would be feeling everything - for Bug this means a sensory circus.  But we pressed on.  Shoes came off and up he went.

I think it was like a minute after he went up - this all happened so fast - when I heard a scream.  Then another.  Then I heard the lady next to me say, “Oh, poor thing is stuck.”

I looked up - and there was Bug in the plastic bubble.  He wasn’t stuck.  There is plenty of room to move in that thing.

I called to the Hubby and said “Bug is scared, can you go get him!”

Then I looked up and saw Bug’s face.  He was not just scared - he was confused, lost, and terrified.  I called up to him, “Bug, just go to the right!  It’s ok, Mommy is here!”  This did nothing.  He was panicking.  He was wailing.  He was howling. 

And then more comments,..

“Oh, what a pitiful thing…”

“Poor kid…”

“Some kids shouldn’t play in those things…”

That is when I felt the anger in me rise and then I just wanted to scream at all of them to shut up!

Seriously, this all happened in minutes - it takes a long time to write it out, but it was literally minutes.

I know some people were showing genuine sympathy - like the mom who yelled to her daughter to “go help the poor little boy who is crying”.  Yep, she meant well, but the last thing Bug needed was some strange girl grabbing his arm.  He howled louder, he screamed louder, he looked more terrified than before.

I don’t feel like I should ever have to tell strangers my kid has Autism.  Why should I have to explain that to the world?  Why is it their business?  But that is when I felt I needed to.  I turned to some of them standing by and I said, “He has Autism - this is all too much for him.  My Husband just needs to get to him and it will be ok.”

And that is when I got those looks - the ones that make me want to smack someone.  The looks that say “Oh, we’re so sorry that your child is broken”.  Come on you Autism moms - you know exactly what I am talking about!  I HATE THOSE LOOKS!  I hate even more the, “Oh, I’m so sorry you have to deal with that”.  I loathe the “Oh, poor thing, it must be so hard for him”.  I know it’s genuine, but I hate it!

I wanted to cry.

The Hubby had reached Bug and he was bringing him out.  Bug grabbed on to me like he hadn’t seen me in a year.  I sat down with him and we rocked and I gave him his calculator (those who have been reading a while know this is his coping mechanism) and he frantically started pressing buttons.  A nice lady came up and offered him a granola bar - again, I know she meant well but really it was not the best thing.

We rocked, he cried, I wanted to cry but didn’t dare with all those people staring at me.

I put his shoes back on him, he finally calmed down, and then I began walking around with him while Bean was still up in the tunnel playing.  He saw the rock wall and began climbing it - this seemed to put him in a very relaxed state.  This makes me want to get a rock climbing wall in our back yard.

I hate seeing my boy so lost and confused and scared.  I hate that despite the fact that I am right there telling him what to do it appears as if he sees me as being thousands of miles away.  I hate that I feel like smacking those parents who mean well but just have no clue.

I hate that I feel guilty for writing about my feelings, like I am breaking some unwritten rule or something.

I hate that kids are required to take their shoes off in those places - not all kids cope well with that!

And I hate that after all of this happened I looked up to watch some little turd in a bomber jacket punch my Bean in the eye TWICE while she was doing nothing but sitting still enjoying the view.  I hate that even though I called out to him to stop and I asked who the parent was no one else did a thing.

I hate that I felt I had to explain my kid - like I have to give an excuse for him. 

But I did appreciate the nice lady who spoke to me about a half hour later and in genuine sympathy said to me, “I felt bad for the little guy up there, he looked so scared.  You did good, mom.”

Thank you whoever you are for telling me I “did good” because right now I just want to go cry.  I have wanted to cry all day.

I hate that I feel guilty for crying!

The L and the Hearth

January 1st, 2009

Word World is Bug’s latest obsession. He got some Word World things for Christmas and if you know the show then you know that the animals are made of letters. The toys have letters that come apart and then stick back together to make the animals. He has a Word World house with all sorts of word building things to go with it. He gets very excited over “building a word”.

It’s been fun watching him play with the word building things but I never could have imagined the meltdown that would ensue when the L for the owl fell beneath the hearth. I don’t know how it got there. He probably accidentally kicked it or something, but when he realized that was where it was oh my goodness - seriously, oh. my. goodness. Full on panic, terror, and that horrible meltdown of Biblical proportions.

It kept going even after Hubby fished the L back out.

And for some reason it turned into Bug telling us that “Elmo dropped it” - Elmo? I have no idea what to make of that. In fact, the thought of “Elmo” dropping it actually sent Hubby and I into total laughter which made the meltdown worse, but seriously, Elmo?

Well, everything is ok now. We powered through and Bug calmed down and the owl is back to being an owl. One can only wonder what tomorrow will bring…

International Year of Astronomy

December 31st, 2008

2009 is the International Year of Astronomy.  I hope you will enjoy the video below and I hope you take a little time to enjoy the stars from wherever you are.  Happy New Year!


túrána hott kurdís by hasta la otra méxico! from Till Credner on Vimeo.

Grownup Drink

December 31st, 2008

I’ve decided that this weekend to celebrate the New Year I am actually going to make a “grownup drink” for the Hubby and I.  Can you believe it!?! Something other than Sunny D or Diet Coke - miracles do happen!

The drink I chose is the “Double Berry Martini” from KraftFoods.com.

It looks yummy and I think we will both enjoy it.  I’m not making it tonight because I just don’t want to go to the grocery store on New Year’s Eve - too crowded!  But I will go on Friday and make it that night.  I can’t wait!

Concerned or Paranoid?

December 30th, 2008

I’ve come to a point in my life where I am wondering if I am just a paranoid mother.  Am I insane for thinking the things I think?  Let me explain…

You see, I have been watching my little Bean grow and grow and now she is two and a half years-old.  She has been through two Autism screenings so far in her short life because Bug has Autism and our doctor wanted to make sure we were on top of things for Bean.  Everything has been clear.  No signs of Autism.  But are there?

Over the past few months (months when we did not have doctor appointments or evaluations) I have been watching Bean begin some very concerning behavior.  Perhaps I shouldn’t be concerned, but I can’t help it.  She began lining things up - perfectly straight rows, repeatedly, and freaking out if they were changed.  She has begun throwing the most insane tantrums ever.  Now, I know tantrums can be age related and she is at the right age, but these tantrums are out of control and seem to come on for absolutely no reason at all.  She is bobbing her head a lot - almost as if it gives her pleasure.  She has become fascinated with wheels and will sit for an hour straight and just spin the wheels on a toy car all the while seeming completely mesmerized by it.  She talks, but half of what she says can’t be understood even by me and I am with her all day every day.

The thing is, she smiles, she laughs, she has great eye contact, her gross motor skills are right on - her fine motor skills, well, they are lacking - she’s alert, she responds to her name, she eats, she seems happy…

Even so, I can’t help but think something is off.

I have even begun wondering about the whole milk debate and Autism - Bean doesn’t drink milk.  She drinks soy milk and has always drank soy milk because when on milk-based formula she developed eczema and when given regular milk the first time she broke out in the worst rash I have ever seen.  Could it be that having her on soy has slowed the process of certain behaviors being noticeable?

I know, I am insane, I just know I am!  But when I look at the things she is doing and think to when Bug started this stuff it totally freaks me out!

In My Opinion…

December 30th, 2008

The greatest evangelical copout in our history is “Well, God knows their hearts.”  You hear it all the time.  From preachers to parishioners when you ask about sin and Hell and salvation you get answers of “Well, I don’t know.  I can’t judge.  God knows their hearts.”

You also hear from those same people in regards to their own sinful ways “I believe God knows my heart.”

Let me tell you something, yes, God does know your heart and if you are depending on that to get you into Heaven then you have a rude awakening coming.  Do you know what the Bible says about your heart?

Matthew 15:18-20

18 But the things that come out of the mouth come from the heart, and these make a man ‘unclean.’ 19 For out of the heart come evil thoughts, murder, adultery, sexual immorality, theft, false testimony, slander. 20 These are what make a man ‘unclean’; but eating with unwashed hands does not make him ‘unclean.’ ”

Jeremiah 17:9

 9 The heart is deceitful above all things
       and beyond cure.

People, your heart and what’s in it aren’t your path to salvation.  I don’t care what your pastor says, what’s in your heart is not what saves you.  You can tell me all day that in your heart you love God, but if you haven’t repented from your sin and trusted Christ as your Savior, if you have nothing more than “Well, God knows my heart” then you aren’t saved, period!

Shame on the Joel Osteen’s of the world for teaching differently!  I just watched a portion of an interview with Osteen where when asked about Atheists and whether they will go to Heaven or Hell he replied that he couldn’t judge who would go to Heaven or Hell and that only “God knows their hearts” - are you kidding me!!! What Bible does Osteen read?  The Atheist denies the existence of God - the Atheist will go to Hell, period!

The ONLY way for that to change is to repent from their sin, turn from it, run far away from it, and trust in Christ as their Savior.  What’s in their “heart” has nothing to do with it - their “heart” is evil and the only One who can transform that is God.